A Standardised European Emergency Card for Patients with Adrenal Insufficiency

At the meeting of the European Council of Affiliated Societies, ECAS, in Paris, October 31, 2014, the participating countries agreed to endorse a uniform "emergency card" for patients suffering from adrenal insufficiency, and to make this standard card available for patients in all our countries.

This topic was discussed at the request of the Patient Support Groups for Addison's disease from Austria, Czech Republic, Denmark, France, Germany, Italy, Ireland, the Netherlands, Norway, Spain, Sweden, Switzerland and UK. Together, they represent approximately 8000 patients. The Support Groups had become aware of the existence of different versions of emergency cards, and argued that one card with an identical logo and identical text would enhance the recognition of such a card, and make patients more secure when travelling.

Please find here examples of existing emergency cards (123kb), modelled on the original version developed by Swedish endocrinologists in 2010, and the new emergency card (1.76mb) developed by the Danish and Dutch Patient Support Groups. As can be seen all existing cards have had a similar template, one side with information in English, the other side with text in the national language. The card is 54 x 85mm and has a plastic cover.

At the ECAS meeting it was agreed to support the card proposed by the Patient Support Groups, including a standardised text in English on one side (the "international"), and that each country would modify the text on the "national side" according to local preferences. To emphasise that ESE stands behind the card `European Society of Endocrinology` is printed at the bottom of the international side.

It was considered to be most effective to display the card on the ESE website, so that it can be further developed into a two-sided card by the national endocrine societies. In their turn, these "national" cards can be displayed on the sites of each national societies to facilitate awareness as well as their distribution.

We are honoured that the Patient Support Groups for Addison's disease have chosen ESE as their partner, and confident that our joint efforts will benefit patients across Europe.

Pia Burman George Mastorakos
Former Chair,
ESE Clinical Committee
ECAS Representative

Affiliated societies

Affiliated Society Membership is open to national endocrine societies in Europe and in countries bordering the Mediterranean Sea as well as pan-European and international sub-specialist endocrine societies.  

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Young Endocrinologists

Resources for Young Endocrinologists and information about the European Young Endocrine Scientists (EYES) Committee is available in the Young Endocrinologist section.

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ESE Special Interest Groups

ESE initiated Special Interest Groups (SIGs) in 2011. The purpose was to stimulate a comprehensive literature review and smaller research projects in areas where there is no general consensus.  Support is given for a limited period of time, in general 3 years. The work performed by the SIGs will be presented at ESE symposia, and published in EJE.

The following SIGs have been initiated;

  • PCOS, 2011-2013, chair Renato Pasquali, Italy.
    Recommendations for diagnosis and management. Work-shop ECE, Wrocław, 2014, 2 publications in EJE 2014:
  • Management of patients with pheochromocytoma/paraganglioma after surgery, 2012-2015,
    The European Society of Endocrinology have developed and published a clinical guideline on the long-term follow-up of patients operated on for a phaeochromocytoma or a paraganglioma in the European Journal of Endocrinology. This guideline was led by Pierre-Francois Plouin, France, as the clinical lead with Dr Olaf M Dekkers, the Netherlands, as the methodological lead.
  • Aggressive pituitary tumours, 2015-2017, chair Gerard Raverot, France. Recommendations for treatment to be presented at ECE 2017 and published in EJE.
  • European Task Force on Endocrine Cancer
    A meeting of the European Task Force on Endocrine Cancer (ETEC) is to be held on 28 May 2016, Munich, Germany in the lead up to the European Congress of Endocrinology (ECE2016).

    Organised by the European Society of Endocrinology (ESE), in collaboration with the European Thyroid Association (ETA), European Network for the Study of Adrenal Tumors (ENS@T) and the European Neuroendocrine Tumor Society (ENETS), this taskforce has been established to unify the action of endocrinologists towards the improvement of endocrine cancers diagnostics and treatment. It hopes to set up a platform of knowledge exchange, to drive improvements in training in endocrine cancer management and to monitor important issues in endocrine cancer taking appropriate action where necessary.

    For more information on this meeting, please view the programme below.

    Programme (pdf)

    The members of ETEC created an expert panel and produced a position statement on the clinical management of endocrine cancers at specialist centres, the need for assessment by a multidisciplinary team, the need for patient opportunities to participate in ongoing research and the requirement for specialist training in the field.

    Gliwice Position Statement on Endocrine Cancer

The ESE Clinical Committee welcomes proposals for new topics.  To suggest a topic, please complete the online proposal form.

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ESE Nurses

The European Society of Endocrinology Nurses’ Group provides a support network and resources for endocrine nurses based in Europe. The Group aims to develop and promote the role of endocrine nurses and raise the profile of Endocrine Nursing throughout Europe. 

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