1st ESE Hypoparathyroidism Patient Forum

This event is in the past

26 Mar 2022

9.00 - 13.00 CET, online

Register here to join this free event.

This project is kindly supported by a restricted grant from Takeda.

Are you a patient with hypoparathyroidism? Join us for the first Hypoparathyroidism Patient Forum hosted by ESE, to attend talks by clinical experts and patients.

Programme*

9:00 - 9:15
Welcome and introduction
Prof. Andrea Giustina, Italy

9:15 - 10:10
Session 1: Hypoparathyrodism symptoms
Prof. Peter Kamenicky, France
Natalie Grosset, France
Tanja Richter, Germany

10:10 - 11:05
Session 2: Current standards of hypopara care – practical problems and limitations in everyday management
Prof. Heide Siggelkow, Germany
Liz Glenister, UK

11:05 - 11:20 Break

11:20 - 12:25 
Session 3: Hormone replacement therapy in hypoparathyroidism – new developments and future prospects
Prof. Erik Fink Eriksen, Norway
Ray Finlay, UK
Barbara, Germany
Natalie Grosset, France
Helen Dahl-Hansen, Norway

12:25 - 13:00
Further questions and closing remarks

Each session includes a Questions & Answers part.

*may be subject to change

This event will be held in English. Simultaneous translations into French, Spanish and Italian will be available.

The event is organised within the Hypoparathyroidism Patient Forum project run by ESE, in collaboration with representatives of patient support groups from across Europe.

ESE has embarked on a journey to establish a patient forum, recognising the need to better understand the unmet needs of patients with rare disorders, and the wide variability in access to optimal care across Europe. Through the project, we are looking for opportunities to bring patients and patient organisations closer to ESE, to work jointly on advocating for a better care, management and treatment of people living with hypoparathyroidism across Europe.

For questions please email: info@ese-hormones.org