PARAT: The ESE Parathyroid Programme
This project is kindly supported by restricted grant's from Takeda and Ascendis Pharmaceuticals
In recent years, there has been renewed interest in parathyroid disorders, as our understanding of this rare disease increases, and new treatment options become available. In 2015, ESE published the Clinical Practice Guideline on the Treatment of Chronic Hypoparathyroidism in Adults.
In 2017, ESE began work establishing a 4-year PARAT programme that would develop further recommendations and strategies that promote best clinical practice and improve access to high quality, relevant parathyroid disorder educational resources.
The PARAT programme delivers a suite of inter-linked, live and enduring materials and activities. It's aim is to proactively support the parathyroid disorder expert community, the wider ESE Focus Area on Calcium and Bone membership, as well as educate non-endocrine clinical colleagues.
In 2019 the PARAT Steering Committee published “Unmet therapeutic, educational and scientific needs in parathyroid disorders: Consensus Statement from the first European Society of Endocrinology Workshop (PARAT). Eur J Endocrinol. 2019 Sep; 181(3): P1–P19.
PARAT is led by a Steering Committee, Co-chaired by Professor Jens Bollerslev (Norway) and Professor Peter Kamenický (France). They are supported by a group of Calcium and Bone metabolism experts, alongside an external Programme Manager and the ESE office.
More information on the organisation of the PARAT Steering Committee can be found here.
2021 PARAT Programme Aims:
Build upon the success of 2018 & 2019:
- Re-engagement of existing PARAT experts and new ambassadors
- Deliver consensus through working groups and communications
Implement 2019 PARAT steering group recommendations:
- Management of primary hyperparathyroidism (PHPT)
- Management of chronic hypoparathyroidism (HypoPT)
- Management of parathyroid disorders during pre-conception, pregnancy & lactation
Deliver unmet educational needs material and knowledge:
- Consensus statements, publications and digital engagement
- Live and enduring materials for general endocrinologists and non-expert practitioners
To deliver the aims and scope for 2021, the PARAT programme has been organised into four active Working Groups, comprising Steering Committee representatives and additional invited International experts. Together, they will implement plans to meet the unmet educational needs of general endocrinologists and non-endocrine practitioners.
2020 PARAT Programme suspended due to COVID-19
PARAT Updates and Educational Materials
As the PARAT programme has extended its scope and impact over 4 years, ESE has provided a wide range of live and enduring educational activities and materials for a variety of audiences including:
- International parathyroid disorder experts
- General endocrinologists including ESE, ECAS and EYES members
- Non-endocrine practitioners
- Patients and their stakeholder groups