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Patient Zone

Patients are at the heart of everything we do to improve endocrinology research, diagnosis and treatment in Europe.

Here, you will find resources for patients and information about our partnerships with patient organisations.

Raising awareness
World Hormone Day 2026

On 24 April 2026, ESE and the endocrine community around the world will unite to raise awareness of what hormones do and why they matter.

Find out more about the campaign and the small steps we can all take towards better hormone health – #BecauseHormonesMatter

Find out more about World Hormone Day
What are hormones and why do they matter?

Hormones are biological messengers that travel throughout the body, telling cells and tissues what to do. When they are out of balance or fail, this can lead to the development of prevalent chronic diseases such as diabetes, thyroid disorders, cancer, osteoporosis and obesity, and other health challenges such as infertility. There are also more than 440 rare endocrine conditions that affect millions of people in Europe, but often go undetected.  

Watch the video to learn more about why hormones matter.

Meet your hormones

Below you will find information about glands in the endocrine system, the hormones they produce and useful resources for anyone affected by related endocrine conditions. This includes patient information leaflets, videos, emergency treatment cards and links to patient groups who can offer additional information and support.

 

Watch the video:What is Endocrinology?

Useful resources:

ESE Corporate Member Esteve has provided information for patients about paediatric adrenocortical carcinoma (please note these materials are developed by and property of Esteve and not of ESE):

ESE partner Patient Advocacy Groups who may be able to provide additional advice and support to patients with adrenal and cardiovascular conditions:

Related conditions could include diabetes, obesity and metabolic disorders.

ESE partner Patient Advocacy Groups who may be able to provide additional advice and support to patients affected by these conditions:

Useful resources:

ESE partner Patient Advocacy Groups who may be able to provide additional advice and support to patients affected by related conditions:​

Useful resources:

Through PARAT, our educational programme on parathyroid disorders, we publish adapted materials to reflect the latest consensus on diagnosis and treatment. These are intended for clinicians to use with patients, but patients and their families may also find them useful:

ESE Corporate Member BridgeBio/Calcilytix has developed ADH1 Patient Information Leaflets in various languages which can be found below (please note these are developed by and property of BridgeBio/Calcilytix and not of ESE):

ESE partner Patient Advocacy Groups who may be able to provide additional advice and support to patients affected by parathyroid-related conditions:

If you'd like to download and use the graphics above, please visit the World Hormone Day Toolkit.

The toolkit also includes a wide range of other materials and resources about hormone health that you can use any time.

Webinars for Patients: Hypoparathyroidism Patient Forum and Adrenal Patient Forum

Patient Forums
10 recommendations for good hormone health

Want to improve your hormone health? Even small changes can make a big difference. Watch the video to see 10 small steps you could take. 

Education and learning

Information for children

The European Society for Paediatric Endocrinology offers child-friendly guides on endocrine conditions in children and young people. Choose from simpler versions for younger children and more detailed guides for older children and teens.

Information for teachers and students

You and Your Hormones is an education resource developed by the Society for Endocrinology. It includes information on hormones and hormone-related conditions, written and reviewed by experts.
Better Education Better Care

Medical professionals participate in continuing education to keep their knowledge up to date so they can provide the best possible care for patients.

The BioMed Alliance, including ESE, produced this short video to show how important it is for doctors to have access to high-quality and unbiased continuing medical education.

Watch The Video

Information for patient groups

All of ESE's work is geared towards improving the diagnosis, treatment and care of patients with hormone-related diseases. We also support many programmes that specifically support patients, including the development of patient information leaflets and videos. Often this involves close collaboration with patient-led organisations, to make sure patients' voices and experiences are heard. Click on the images below to find out more.