This webinar is free to attend.
Please note: ESE does not permit attendance of sanctioned individuals or individuals from sanctioned institutions at any ESE events. Please click here to see ESE's Sanctions Policy
Programme
10:00 - 10:15
Welcome and introduction
Prof. Andrea Giustina (Italy) & Tanja Richter (Germany)
10:15 - 11:10
Session 1
Chairs: Dr. Luigi di Filippo (Italy) & Natalie Grosset (France)
Physiological impact of hypoparathyroidism
Dr. Luis Miguel Cardoso (Portugal)
Pregnancy in hypoparathyroidism - patient experience
Isabel Wray da Silva (UK)
Q&A
11:10 - 11:25
Break
11:25 - 12:30
Session 2
Chairs: Prof. Heide Siggelkow (Germany) & Gro-Anita Hindenes (Norway)
Bone pain in hypoparathyroidism - patient experience
Sarah Schäfer (Germany)
Impact of hypoparathyroidism on the bones
Dr. Line Underbjerg (Denmark)
Kidney challenges and care - patient experience
Tania Gelmetti (UK)
Caring for your kidneys in hypoparathyroidism
Dr. Jean-Philippe Bertocchio (France)
Q&A
12:30 - 13:00
Open Q&A and Session Close
This educational webinar has a dedicated Questions & Answers time, in which the panellists will aim to discuss questions from the audience.
Please note:
- We are not able to give medical advice or answer questions related to particular circumstances of a patient. Please contact your doctor if you require medical advice.
- We may not be able to answer all questions, but we will endeavour to cover the common interests.
*may be subject to change
This event will be held in English. Simultaneous translations into German, Romanian and Spanish will be available.
Please note: The live webinar can only support 1000 delegates.
Clinical experts
Prof. Andrea Giustina, Italy
Prof. Heide Siggelkow, Germany
Patient organisations representatives
Natalie Grosset, representative of Hypoparathyroidism, France
Tanja Richter, representative of Netzwerk Hypopara, Germany
Isabel Wray da Silva (UK)
Isabel Wray da Silva is a hypoparathyroidism patient advocate, founder of Hypopara Mums, and mum of two. She has lived with permanent post-surgical hypoparathyroidism for 39 years following a total thyroidectomy for thyroid cancer as a child. Through Hypopara Mums and her wider advocacy work, Isabel supports women navigating pregnancy and breastfeeding with hypoparathyroidism and works alongside healthcare professionals to raise awareness and improve education around the condition.
https://www.hypoparamums.com/
Sarah Schäfer
Sarah Schäfer is 36 years old and comes from Germany. She has ADH1 hypoparathyroidism- likely since birth. It was diagnosed via genetic blood testing in 2018. She inherited the gene mutation from her father, though the condition only manifested in her.
Dr. Jean-Philippe Bertocchio
Dr. Jean-Philippe Bertocchio is a French nephrologist working in an endocrinology department, currently serving at Pitié-Salpêtrière Hospital (Paris, France) and CEO of SKEZI®, a health innovation company. With a PhD in Physiology and Physiopathology, his clinical and research expertise focuses on rare calcium/phosphate disorders, hypoparathyroidism, nephrolithiasis, and electrolyte imbalances. He is the Principal Investigator of the Épi-Hypo cohort (epidemiology of hypoparathyroidism in France) and leads the For-Enamel study on Familial Hypocalciuric Hypercalcemia (FHH). Author of over 80 peer-reviewed publications, he has contributed to national and European guidelines, including the PNDS for hypoparathyroidism and ESE PARAT recommendations. His work bridges basic science (genetics, epigenetics, cellular signaling, renal physiology) and clinical innovation, such as AI applications in pharmacovigilance and digital health tools for patient-reported outcomes. A registered expert for the European Commission and member of ESE, ASN, ERA-EDTA, and SFE, he teaches rare disorders management. His awards include the Léon Perlemuter Prize (French Academy of Medicine) and grants from ANR, and several Pharma companies for translational research. Dr. Bertocchio is deeply committed to precision medicine and patient-centered care.
This educational webinar has a dedicated Questions & Answers time, in which the panellists will aim to discuss questions from the audience.
We encourage you to pre-submit your questions to the panellists via the link below. You can do so until 10 September 2026.
Please note:
- We are not able to give medical advice or answer questions related to particular circumstances of a patient. Please contact your doctor if you require medical advice.
- We may not be able to answer all questions, but we will endeavour to cover the common interests.
- You will also be able to ask questions live during the webinar.
Recordings of the webinar will be available on the ESE Website approximately 3 week's after the webinar has taken place.
This event is kindly sponsored by:
20/05/2026