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Patient Advocacy Group Affiliate Membership

Through ESE’s Patient Advocacy Group (PAG) Affiliate Membership, PAGs can be formally affiliated to ESE, and benefit from support to assist them in achieving their objectives.

About the ESE PAG Affiliate Membership Scheme

All of ESE’s activities are underpinned by our ambition to provide the best possible care and support to patients with endocrine diseases. In 2021 the ESE Patient Advocacy Group (PAG) Affiliate Membership Scheme was created to enable us to connect directly with patients and patient advocates, and ensure that the patient's voice is reflected across all our activities.

Since its inception, the Scheme has grown from 10 founding member PAGs, to now over 30, and this number continues to rise.

By patients, for patients: The ESE PAG Communities

Given the rapid growth of the PAG Affiliate Membership Scheme, and to ensure we remain inclusive and can best support the needs of PAGs covering all areas of endocrinology, in 2025 the PAG Affiliate Membership Scheme was adapted to create PAG Communities, aligned with ESE's Focus Areas.

Through this Community structure, PAGs can collaborate with other similar groups, sharing resources and discussing the key issues affecting their patient members. 

Email Natalie Dass for more information or to apply for membership

Visit the ESE PAG Communities >>>
Adrenal and Cardiovascular PAG Community
Calcium and Bone PAG Community
Diabetes, Obesity, Metabolism and Nutrition PAG Community
Endocrine-related Cancer PAG Community
Pituitary and Neuroendocrinology PAG Community
Reproductive and Developmental Endocrinology PAG Community
Thyroid PAG Community

Why Join ESE as a PAG Affiliate Member?

PAGs play an essential role in ensuring that patients throughout Europe have access to the best information about their condition as well as to diagnosis and care. We see this as a two-way partnership: PAGS are uniquely placed to provide an important patient perspective to inform ESE’s initiatives, and ESE can support PAGs in their activities by giving patients a voice in our policy and advocacy strategies and providing access to up-to-date medical information.

The ESE PAG Affiliate Membership is free of charge to Patient Groups who meet all the criteria opposite.

Membership Benefits

When you join ESE, you'll get:

  • Your PAG's name and website link included on this ESE PAG Membership page
  • License to use the ‘ESE Affiliated Partner’ logo on your website and materials
  • Membership of the ESE PAG Board, which meets twice a year.
  • A reduced rate for ESE individual memberships for your PAG representatives
  • Access to the European Congress of Endocrinology (ECE), with complimentary registration for up to two of your organisation's representatives (online or in person)

Who can join?

A PAG can apply for ESE PAG Affiliate Membership if they meet all of the following criteria: 

  • Have a clear endocrine disease focus 
  • Have their legal base in Europe, or if this is not the case, can demonstrate a clear focus of activity on Europe
  • Have a patient support and information offering that is accessible to patients across Europe
  • Have a formal not-for-profit status, structure and bylaws, governing the functioning of the PAG, as defined by the country of registration
  • Have a clinical or scientific advisory group or consultant supporting the PAG in its medical information objectives, of which at least one medical advisor or consultant is (or agrees to become) an ESE Member
  • Are transparent about support received from industry sources and the purpose of such support
  • Agree to ESE's Humanitarian Statement

Please note that we also use the term Patient Advocacy Group (PAG) to refer to patient support groups, patient organisations, patient groups and any other form that applies to organisations that represent patients’ interest and fulfil the above criteria.

Email Natalie Dass for more information or to apply for membership

Current Members

Find out more about the membership and remit of the Patient Advocacy Group Board >>

Go To PAG Board
Join ESE Today

To find out more about joining us as a Patient Advocacy Group Affiliate Member email ESE using the link below.

Email ESE's Membership Team

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