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ESE Adrenal Patient Forum 2025
Living with Adrenocortical Carcinoma (ACC): Care, Support, and What’s Ahead

Saturday 4 October 2025
10:00 - 13:00 CEST
Online

Register Now

 

The Adrenal Patient Forum webinar is free to attend. Please register by clicking the link below.

Register Now

Programme*

10:00 - 10:05
Welcome and introduction
Prof. Stefanie Hahner (Germany) 

Session 1
Chairs: Prof. Stefanie Hahner (Germany) & Jennifer Rayner (UK)

10:05 - 10:20
Understanding ACC and standard treatments

Dr. Rossella Libe (France)

10:20 - 10:35
Mitotane: Effectiveness and managing side effects
 

Dr. Barbara Altieri (Italy)  

10:35 - 10:45
Patient perspective: Beginning of the journey
 

Guido Frisiani (Italy)

10:45 - 11:15
Q&A

11:15 - 11:30
Break

Session 2
Chairs: Dr. Alessandro Prete (UK) & Jo Grey (UK)

11:30 - 11:45
Psychological support throughout the patient journey
 
 
Prof. Imad Maatouk (Germany)

11:45 - 12:00
New treatments for ACC
 
Dr. Cristina Ronchi (UK) 

12:00 - 12:10
Patient perspective: long-term survivor journey 

Marc Büdenbender (Germany)

12:10 - 12:35
Q&A

12:35 - 13:00
Open Q&A and session close

 

*may be subject to change

This educational webinar has a dedicated Questions & Answers time, in which the panellists will aim to discuss questions from the audience.

We invite you to submit your questions to the panellists before the event, by 12 September 2025. You can do it via this form.

Please note:

  • We are not able to give medical advice or answer questions related to particular circumstances of a patient. Please contact your doctor if you require medical advice.
  • We may not be able to answer all questions, but we will endeavour to cover the common interests.
  • You will also be able to ask questions live during the webinar.

 

This event will be held in English. Simultaneous translations into French, German and Italian will be available.

Please note: The live webinar can only support 1000 delegates.

This event is kindly sponsored by Recordati Rare Diseases 

The recordings of the webinar will be available approximately 3 weeks after the event.