Saturday 15 November 2025, 10:00 - 13:00 CET
Online
The ESE Hypoparathyroidism Patient Forum webinar is free to attend. Please register by clicking the link below.
Programme*
10:00 - 10:15
Welcome and introduction
Prof. Andrea Giustina (Italy) & Tanja Richter (Germany)
10:15 - 11:30
Session 1: Social Impact of Hypoparathyroidism
How to make the rare disease patient voice heard in Health Technology Assessment
François Houÿez, EURORDIS Rare Diseases Europe (France)
Scientific data on quality of life and hypoparathyroidism social impact
Prof. Heide Siggelkow (Germany)
Patient journey
Natalie Grosset (France)
Panel discussion
11:30 - 11:45
Break
11:45 - 12:35
Session 2: Revised ESE Guidelines on Hypoparathyroidism
Chairs: Dr. Liesbeth Winter (The Netherlands) and Teodor Dumitrescu (Romania)
Revised ESE Guidelines on Hypoparathyroidism
Prof. Jens Bollerslev (Norway)
Patient view on Revised ESE Guidelines on Hypoparathyroidism
Lucy Weigall (UK)
Q&A
12:35 - 13:00
Open Q&A and session close
This educational webinar has a dedicated Questions & Answers time, in which the panellists will aim to discuss questions from the audience.
Please note:
- We are not able to give medical advice or answer questions related to particular circumstances of a patient. Please contact your doctor if you require medical advice.
- We may not be able to answer all questions, but we will endeavour to cover the common interests.
*may be subject to change
This event will be held in English. Simultaneous translations into French, German and Romanian will be available.
Please note: The live webinar can only support 1000 delegates.
Clinical experts
Prof. Andrea Giustina, Italy
Prof. Heide Siggelkow, Germany
Patient organisations representatives
Natalie Grosset, representative of Hypoparathyroidism, France
Tanja Richter, representative of Netzwerk Hypopara, Germany
Prof. Dr. Heide Siggelkow MD PhD
Heide Siggelkow works as the medical director and endocrinologist in an outpatient clinic for endocrine or metabolic bone diseases including osteoporosis, hypoparathyroidism, hyperparathyroidism and rare bone diseases. Between 2011 and 2015, she was head of the Association of German Language Societies in the special Field of Osteology (DVO). In this position, she initiated and supported the development of the Osteologic Research Centers DVO. She has been president of the German Society of Osteology (DGO) from 2017–2019. In 2017, the Intensive Course for Clinical Endocrinology of the German Society of Endocrinology (DGE) took place in Göttingen under her leadership, and in 2019 she hosted the yearly German Congress of Endocrinology in Göttingen. From 2018-2022 she has been cofounder and spokesperson of the German network of rare bone diseases, “Netzwerk für seltene Osteopathien NetsOs”. 2017-2020 she was member of the European Calcified Tissue Society (ECTS) Website and Social Media Action Group, since 2021 she joined the ECTS Action group of Rare Bone Diseases and is member of the ECTS Board since 2022. 2020-2024 she was member of the ESE Education committee and representative in the PARAT programme of the European Society of Endocrinology (ESE). She is now Expert Panel member of the ESE Educational Programme on Rare Calcium, Phosphate and Bone Disorders (RCPBD). Her basic scientific work at the University of Göttingen Medical Center focuses on molecular and metabolic mechanisms important for the interplay between fat and bone in primary and secondary forms of osteoporosis, with a special focus on cortisol and bone. Another main topic is the investigation of mechanisms of osteoporosis in mastocytosis. Her clinical research is now concentrated on secondary forms of osteoporosis and on hypoparathyroidism with a special focus on quality of life.
Jens Bollerslev
Professor emeritus of Endocrinology at the University of Oslo, Norway. He was member of the Executive Board, the European Society of Endocrinology (ESE), 2013-7, chair of the ESE Education Committee, 2014-7, and chair of the ESE committee for Post Graduate Courses, 2015-9. Presently he co-chairs the ESE PARAT project and just completed the co-chair-role of the revision of ESE Clinical Guideline on Management of chronic hypoparathyroidism in adults (2023-25). His special interest is within clinical and translational endocrinology, and in classical endocrine diseases, such as Acromegaly and Cushing’s, often studying bone as target tissues for clinical activity. A major interest has been devoted to metabolic bone disorders, other than postmenopausal osteoporosis, as illustrated by his work for The Scandinavian Investigation of Primary Hyperparathyroidism. He has a deep interest in the control of bone remodeling as seen in classical endocrine and inherited metabolic diseases, and also in relation to solid organ transplantation. As such, he has published more than 350 papers in international, peer-reviewed journals.
This educational webinar has a dedicated Questions & Answers time, in which the panellists will aim to discuss questions from the audience.
We invite you to submit your questions to the panellists before the event, by 24 October 2025. You can do it via this form.
Please note:
- We are not able to give medical advice or answer questions related to particular circumstances of a patient. Please contact your doctor if you require medical advice.
- We may not be able to answer all questions, but we will endeavour to cover the common interests.
- You will also be able to ask questions live during the webinar.
This event is kindly sponsored by:
30/07/2024
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