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ESE Hypoparathyroidism Patient Forum 2025

Saturday 15 November 2025, 10:00 - 13:00 CET
Online

Register for free

The ESE Hypoparathyroidism Patient Forum webinar is free to attend. Please register by clicking the link below.

Register Now

Programme*

10:00 - 10:15
Welcome and introduction
Prof. Andrea Giustina (Italy) & Tanja Richter (Germany)

10:15 - 11:30
Session 1: Social Impact of Hypoparathyroidism

How to make the rare disease patient voice heard
TBC

Scientific data on quality of life and hypoparathyroidism social impact
Prof. Heide Siggelkow (Germany)

Patient journey 
Natalie Grosset (France)

Panel discussion 

11:30 - 11:45
Break

11:45 - 12:35
Session 2: Revised ESE Guidelines on Hypoparathyroidism

Chairs: Dr. Liesbeth Winter (The Netherlands) and Teodor Dumitrescu (Romania) 

Revised ESE Guidelines on Hypoparathyroidism
Prof. Jens Bollerslev (Norway)

Patient view on Revised ESE Guidelines on Hypoparathyroidism
Liz Glenister (UK)

Q&A

12:35 - 13:00
Open Q&A and session close

 

*may be subject to change

This educational webinar has a dedicated Questions & Answers time, in which the panellists will aim to discuss questions from the audience.

We invite you to submit your questions to the panellists before the event, by 24 October 2025. You can do it via this form.

Please note:

  • We are not able to give medical advice or answer questions related to particular circumstances of a patient. Please contact your doctor if you require medical advice.
  • We may not be able to answer all questions, but we will endeavour to cover the common interests.
  • You will also be able to ask questions live during the webinar.

 

This event will be held in English. Simultaneous translations into French, German and Romanian will be available.

Clinical experts

Prof. Andrea Giustina, Italy
Prof. Heide Siggelkow, Germany

Patient organisations representatives

Natalie Grosset, representative of Hypoparathyroidism, France
Tanja Richter, representative of Netzwerk Hypopara, Germany 

The recordings of the webinar will be available approximately 3 weeks after the event.

This event is kindly sponsored by: 

 

Published
30/07/2024
Tags
Patients , Clinicians , Nurses , Researchers , Public , ESE Events , Patient Forums , Calcium and Bone , Patients , Clinicians ,