Rare Disease Day
Visit Rare Disease Day website
On Rare Disease Day - 28 February, ESE in coordination with its Patient Advocacy Groups and other partners, including Endo-ERN, calls for better diagnosis and treatment for the more than 400 rare endocrine conditions as well as many other rare diseases. More needs to be done to improve equitable access for the diagnosis of rare (endocrine) diseases in Europe and beyond. We call on our community to join us in this effort.
On 3 March ESE is organising "ESE Talks... Sarcopenia in Rare Endocrine Disorders" to optimise the knowledge of doctors, nurses and researchers working in this area. For more information and to register visit the event website.
Published
27/01/2026
27/01/2026