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Rare Disease Day

On Rare Disease Day, ESE in coordination with its Patient Advocacy Groups and other partners, including Endo-ERN, calls for better diagnosis and treatment for the more than 400 rare endocrine conditions as well as many other rare diseases. More needs to be done to improve equitable access for the diagnosis of rare (endocrine) diseases in Europe and beyond. We call on our community to join us in this effort.

Rare Disease Day was set up in 2008 and is coordinated by EURORDIS and 65+ national alliance patient organisation partners.

Visit the Rare Disease Day website