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European Society of Endocrinology Clinical Practice Guideline for long-term follow-up of patients operated on for a phaeochromocytoma or a paraganglioma


P F Plouin, L Amar, O M Dekkers, M Fassnacht, A P Gimenez-Roqueplo, J W M Lenders, C Lussey-Lepoutre, O Steichen on behalf of the Guideline Working Group

Developed By:

The European Society of Endocrinology, including representatives from the European Society of Hypertension and the European Network for the Study of Adrenal Tumours.


Phaeochromocytomas and paragangliomas (PPGLs) are rare neuroendocrine tumours. Standard treatment is surgical resection. Following complete resection of the primary tumour, patients with PPGL are at risk of developing new tumoural events. The present guideline aims to contribute to improving knowledge and standardising clinical care regarding long-term follow-up of patients operated on for a PPGL and to strengthen cooperation between patients and care providers. The relevant carers include endocrinologists, internists, oncologists, surgeons, vascular medicine specialists, radiologists, geneticists, biologists, pathologists, general practitioners and patient organisations.