ESE Adrenal Patient Forum
This project is kindly sponsored by Recordati Rare Diseases.
Open access webinars for patients
Our next webinar 'Living with ACC: Care, Support, and What’s Ahead' will take place on Saturday 4 October 2025 - more information coming soon.
The Adrenal Patient Forum webinar series started in 2024 with the aim of responding to educational needs of patient community in the area of adrenal endocrinology. In 2023 ESE ran a survey amongst affiliated Patient Advocacy Group members to evaluate interest in such webinars and to identify the priority topics. Following the topics indicated in the survey, dedicated Programme Committees design the programmes of the webinars.
Clinical experts
Prof. Stefanie Hahner, Germany
Dr. Alessandro Prete, UK
Patient organisations representatives
Marc Büdenbender, Germany, Let’s Cure ACC
Jo Grey, UK, ACC Support UK
Adrenal Patient Forum 2024: Adrenal Insufficiency - daily living and adrenal crisis prevention
The pilot webinar ‘Adrenal Insufficiency: daily living and adrenal crisis prevention’ took place on 30 November 2024. It brought an international audience of 600 participants from 50 countries, who heard from a line-up of clinical and patient experts discussing various aspects of living with adrenal insufficiency, and preventing and managing adrenal crisis.
The programme and the recordings of the sessions are available below.
The 2024 event was sponsored by Recordati Rare Diseases and Crinetics Pharmaceuticals.
Clinical experts
Prof. Stefanie Hahner, Germany
Dr. Alessandro Prete, UK
Patient organisations representatives
Antonella Campodall'Orto, representative of AIPAd Italy
Philippa Sharman, representative of Addison’s Disease Self Help Group UK
10:00 - 10:20
Welcome and introduction
Adrenal insufficiency – overview of current management standards
Prof. Stefanie Hahner (Germany)
10:20 - 11:15
Session 1
Daily living with adrenal insufficiency
Chairs: Prof. Eystein Husebye (Norway) & Teresa Valencia (Spain)
Clinical perspective
Dr. Alessandro Prete (UK)
Patient perspective
Jette Kristensen (Denmark)
Q&A
11:15 - 11:30 Break
11:30 - 12:30
Session 2
Prevention and management of adrenal crisis
Chairs: Dr. Sofia Llahana (UK) & Antonella Campodall'Orto (Italy)
Patient experience
Philippa Sharman (UK)
Clinical perspective
Dr. Irina Chifu (Germany)
Q&A
12:30 - 13:00
Open Q&A and session close
Watch the webinar recording (English - original)
Watch the original English recording of each session by clicking through the videos on the right.
Watch the webinar recording (French)
Watch the recordings of each session with a French simultaneous translation by clicking through the videos on the right.
This is a recording of a live simultaneous translation performed by a third party during the live virtual event. The European Society for Endocrinology does not accept responsibility for its accuracy. The virtual delivery carries a risk of disruptions to the audio-visual feed, which may lead to interruptions of interpretation. In case of any inconsistency between the interpretation and the original language of the webinar, please refer to the original English language recording.
Watch the webinar recording (German)
Watch the recordings of each session with a German simultaneous translation by clicking through the videos on the right.
This is a recording of a live simultaneous translation performed by a third party during the live virtual event. The European Society for Endocrinology does not accept responsibility for its accuracy. The virtual delivery carries a risk of disruptions to the audio-visual feed, which may lead to interruptions of interpretation. In case of any inconsistency between the interpretation and the original language of the webinar, please refer to the original English language recording.
Watch the webinar recording (Italian)
Watch the recordings of each session with an Italian simultaneous translation by clicking through the videos on the right.
This is a recording of a live simultaneous translation performed by a third party during the live virtual event. The European Society for Endocrinology does not accept responsibility for its accuracy. The virtual delivery carries a risk of disruptions to the audio-visual feed, which may lead to interruptions of interpretation. In case of any inconsistency between the interpretation and the original language of the webinar, please refer to the original English language recording.