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ESE Adrenal Patient Forum 2025

Adrenal Patient Forum 2025: Living with Adrenocortical Carcinoma (ACC): Care, Support, and What’s Ahead

The webinar ‘Adrenal Patient Forum 2025: Living with Adrenocortical Carcinoma (ACC): Care, Support, and What’s Ahead’ took place on 4 October 2025. It brought an international audience of 140 participants from 44 countries, who heard from a line-up of clinical and patient experts discussing various aspects of living with Adrenocortical Carcinoma.

The programme and the recordings of the sessions are available below. 

This webinar was kindly sponsored by Esteve and Recordati Rare Diseases.

Clinical experts

Prof. Stefanie Hahner, Germany
Dr. Alessandro Prete, UK

Patient organisations representatives

Marc Büdenbender, Germany, Let’s Cure ACC 
Jo Grey, UK, ACC Support UK

10:00 - 10:05
Welcome and introduction
Prof. Stefanie Hahner (Germany) 

Session 1
Chairs: Prof. Stefanie Hahner (Germany) & Jennifer Rayner (UK)

10:05 - 10:20
Understanding ACC and standard treatments
Dr. Rossella Libe (France)

10:20 - 10:35
Mitotane: Effectiveness and managing side effects 
Dr. Barbara Altieri (Italy)  

10:35 - 10:45
Patient perspective: Beginning of the journey 
Guido Frisiani (Italy)

10:45 - 11:15
Q&A

11:15 - 11:30
Break

Session 2
Chairs: Dr. Lorenzo Tucci (Italy) & Jo Grey (UK)

11:30 - 11:45
Psychological support throughout the patient journey  
Prof. Imad Maatouk (Germany)

11:45 - 12:00
New treatments for ACC  
Dr. Cristina Ronchi (UK) 

12:00 - 12:10
Patient perspective: long-term survivor journey 
Marc Büdenbender (Germany)

12:10 - 12:35
Q&A

12:35 - 13:00
Open Q&A and session close

Watch the webinar recording (English - original)

Watch the original English recording of each session by clicking through the videos on the right.

Watch the webinar recording (French)

Watch the recordings of each session with a French simultaneous translation by clicking through the videos on the right.

This is a recording of a live simultaneous translation performed by a third party during the live virtual event. The European Society for Endocrinology does not accept responsibility for its accuracy. The virtual delivery carries a risk of disruptions to the audio-visual feed, which may lead to interruptions of interpretation. In case of any inconsistency between the interpretation and the original language of the webinar, please refer to the original English language recording.

Watch the webinar recording (German)

Watch the recordings of each session with a German simultaneous translation by clicking through the videos on the right.

This is a recording of a live simultaneous translation performed by a third party during the live virtual event. The European Society for Endocrinology does not accept responsibility for its accuracy. The virtual delivery carries a risk of disruptions to the audio-visual feed, which may lead to interruptions of interpretation. In case of any inconsistency between the interpretation and the original language of the webinar, please refer to the original English language recording.

Watch the webinar recording (Italian)

Watch the recordings of each session with an Italian simultaneous translation by clicking through the videos on the right.

This is a recording of a live simultaneous translation performed by a third party during the live virtual event. The European Society for Endocrinology does not accept responsibility for its accuracy. The virtual delivery carries a risk of disruptions to the audio-visual feed, which may lead to interruptions of interpretation. In case of any inconsistency between the interpretation and the original language of the webinar, please refer to the original English language recording.