The fourth ESE Hypoparathyroidism Patient Forum was held on 15 November 2025.
The European hypopara community gathered again to discuss various aspects of managing the disease. This edition of the webinar focused on the Social Impact of Hypoparathyroidism, both from the clinical perspective and the impact on social and family life, and the Revised ESE guidelines which included the patient view on the new guidelines. ESE thanks all clinicians, patients and their family members involved in this event, for sharing expertise and personal experiences, and creating an engaging webinar for an international audience of almost 200 participants. We also thank all patient organisations who helped us in organisation and promotion of this event.
The programme, recordings of the sessions, and additional resources are available below.
This event was sponsored by Ascendis Pharma, Alexion and BridgeBio.
Welcome and introduction
Prof. Andrea Giustina (Italy) & Tanja Richter (Germany)
Session 1: Social Impact of Hypoparathyroidism
Chairs: Prof. Andrea Giustina (Italy) & Prof. Alberto Pereira – ENDO-ERN (The Netherlands)
How to make the rare disease patient voice heard in Health Technology Assessment
François Houÿez, EURORDIS Rare Diseases Europe (France)
Scientific data on quality of life and hypoparathyroidism social impact
Prof. Heide Siggelkow (Germany)
Patient journey
Natalie Grosset (France)
Panel discussion
Session 2: Revised ESE Guidelines on Hypoparathyroidism
Chairs: Teodor Dumitrescu (Romania) & Dr. Elizabeth (Liesbeth) Winter (The Netherlands)
Revised ESE Guidelines on Hypoparathyroidism
Prof. Jens Bollerslev (Norway)
Patient view on Revised ESE Guidelines on Hypoparathyroidism
Lucy Weigall (UK)
Q&A
Open Q&A with all speakers and chairs
Session close
Prof. Andrea Giustina (Italy)
Tanja Richter (Germany)
Watch the webinar recording
Watch the original English recording of each session by clicking through the videos on the right.
Watch the webinar recording (French)
Watch the recordings of each session with a French translation by clicking through the videos on the right.
This is a recording of a live simultaneous translation performed by a third party during the live virtual event. The European Society for Endocrinology does not accept responsibility for its accuracy. The remote delivery carries a risk of disruptions to the audio-visual feed, which may lead to interruptions of interpretation. In case of any inconsistency between the interpretation and the original language of the webinar, please refer to the original English language recording.
Watch the webinar recording (German)
Watch the recordings of each session with a German translation by clicking through the videos on the right.
This is a recording of a live simultaneous translation performed by a third party during the live virtual event. The European Society for Endocrinology does not accept responsibility for its accuracy. The remote delivery carries a risk of disruptions to the audio-visual feed, which may lead to interruptions of interpretation. In case of any inconsistency between the interpretation and the original language of the webinar, please refer to the original English language recording.
Watch the webinar recording (Romanian)
Watch the recordings of each session with a Romanian translation by clicking through the videos on the right.
This is a recording of a live simultaneous translation performed by a third party during the live virtual event. The European Society for Endocrinology does not accept responsibility for its accuracy. The remote delivery carries a risk of disruptions to the audio-visual feed, which may lead to interruptions of interpretation. In case of any inconsistency between the interpretation and the original language of the webinar, please refer to the original English language recording.