ESE as Your Research Partner

ESE – your partner in research

In the multistakeholder environment that EU funded research aims for, the European Society of Endocrinology can be approached to represent the scientific, clinical and educational expertise around endocrine and metabolic research areas that many research structures may benefit form and require.

ESE Registered as organization in the EU

ESE is able to participate in EU funding programmes and procurements, and to be an officially recognised partner for EU research funded programmes.

ESE and research

ESE has been engaged and is engaged is several forms of research. ESE runs the database ERCUSYN, the European Cushing’s Syndrome Registry that by now includes data from more than 2000 patients and 60 participating centers. Similarly, ESE has been performing audits and the data collection related to the approach across Europe for different pituitary diseases. In collaboration with endo-ERN, ESE is engaged is collecting data around the impact of COVID-19 on patients with rare endocrine diseases.

ESE at the heart of European Endocrinology

Affiliated with all European National societies, with Specialty Societies covering specific areas of endocrinology and Patient Support Organisations, ESE has a vast network at geographical, thematic and stakeholder level that can be of benefit to the development of your consortium.

Centres of Special Interest

In collaboration with the ESE Council of Affiliated Societies, representing 54 National Endocrine Societies, ESE is developing an interactive resource highlighting the areas of clinical and research interest of different institutions around Europe. These Centers of Special Interest can be attractive partners to those groups that are looking to expand their partnership basis, eg within the scope of the ambition of the EU ‘Widening Participation and Strengthening the European Research Area.

Partner of endo-ERN

ESE, together with its affiliated society ESPE (European Society of Pediatric Endocrinology) is a partner of the Rare Endocrine Disorders focussed European Reference Network (Endo-ERN). The ERN’s account for more than 440 rare endocrine diseases or rare diseases with an important endocrine component.

To day, endo-ERN counts 71 reference centers and 15 affiliated partners in 27 countries.

In its turn Endo-ERN partners with ESE in ESE ‘s Rare Diseases Committee to collect data around rare diseases, formulate guidelines, and informs and supports the overall European Endocrine Community with appropriate clinical and educational initiatives, e.g. as part of the annual European Congress of Endocrinology.

Policy Presence

ESE has established a policy and advocacy presence in Brussels, aiming to impact on the development of health policies that recognize the importance of endocrine health and disease. This includes advocating the presence of endocrine research in the EU research programmes, and the allocation of more appropriate levels of research funding to the discipline. More information on ESE’s policy and advocacy strategy can be found here.

ESE Focus Area –expert engagement and discussion

In the 8 ESE Focus Areas, ESE brings together basic science and clinical experts in the areas of interest. These focus area and their respective expert panels inform ESE about the respective clinical, research and educational needs, and take appropriate initiatives. The expert panels also serve in an advisory capacity to internal and external proposals.

Augmenting the impact of research.

Increasingly, EU funded research proposals need to demonstrate how the requested research can demonstrate a real impact on European healthcare and the lives of European citizens. ESE, through the development of guidelines, the dissemination of research findings during its annual congress and additional initiatives, the development of training materials for physicians and patients, and through its wide reach into the European endocrine community is a partner of choice to enhance the impact of your research proposal.

ESE’s policy and advocacy activities can further support the translation of research into an impact on health policies. To this end the ESE Council of Affiliated Societies, representing 54 national endocrine societies across the wider European geography, works together to deliver both a focus on European and on National health policies.

For more information, please contact:

Dirk De Rijdt, Director Strategic Partnerships

dirk.de-rijdt@ese-hormones.org

Mobile: 32 478 79 67 34